The back to school roller coaster

September 7, 2009 at 11:05 am 1 comment

There’s a lot going on around here. With school starting and the like, it’s been one heck of a ride the past few weeks.

When you have a special needs child that goes to kindergarten or even changes schools, it just becomes that extra bit of twitch factor that other parents don’t have. Add that to everything else, and you get a back to school roller coaster that just doesn’t slow down.

Personally, I’d like this coaster to pull into the station, but I know when it does, I’ll complain that life is boring again (especially here in E. Nowhere) and I’ll wish to be back on.

So, here’s the latest roller coaster set of moments.

Now that Broken Bed fiasco 2009 has ended with a successfully fixed bed, we can all laugh at the latest piece of delusion that came through my mailbox-
a card thanking us for our purchase.
No, not kidding.
a week of screaming, sobbing and being totally glad that the boys weren’t here so that the bed could get fixed in peace, and we get a postcard for a year old bed? What?
Whatever.
Will I patronize this store again? Most likely, at the location that gave us the most help. I, however, will not deal with the person who shares my name and her customer disservice.

Since coming back from the outlaws in Arizona, my darling shrimper has been nothing short of a pill. Massive pill. Rude, spoiled and entitled acting. That’s what happens when you hang with the outlaws too long. I spent the first week back retraining him that 1) being rude will get you nowhere but your room, with all priveleges revoked, like your television viewing, and 2) you may not have everything you see, control the agenda to your heart’s desire, or speak to me like I’m the hired help. Again, this will get you nowhere but your room, with no television.

And no, a 45 minute meltdown will STILL get you nowhere.

Charming, isn’t it?

Then, Shrimper thought it would be a good idea to explore the cabinets on the top of his wall. His room has built in cabinets, and these cabinets are almost at ceiling level. I get a call at work on my cell phone, and hear that he’s fallen off of the cabinets and hit his face. Yes, huge bruise and scrape on cheek and neck. Great way to show up to the first week of Kindergarten-bruises and scrapes. Joy.

And then, we had the biggest ride of all. The medication ride. Isaac’s ADHD meds are insanely expensive. Hardcore expensive. That’s even WITH insurance. So, we found a few coupons to cover at least one of the copays. That’s when the pharmaceutical companies began their rain on my labor day weekend. Our coupon was declined at the pharmacy, because we had used one, and it was one per person, per lifetime.

what? Really?

So, we come back, call the doctor and explain the situation. She comes back with a card that gives us 50% off of copays for 10 months.

Ok. we can get behind that.

so, I drive all the way down to the doc’s office, and then all the way back home so we can activate the card and get the meds, as we’re down to our last 2 pills and two pills and a bunch of days doesn’t add up around here, especially with kindergarten starting.

Let it be known that I disclosed what happened at the pharmacy to the doc’s office. They assured me that this would be just fine and work well.

Yeah, it didn’t work. So, I spent a better portion of two hours dealing with Shire pharmaceuticals and their idiot staff. Here’s how it all broke down…

First step-talk to customer service and explain the situation. Get an extremely rude rep, who makes sure that she lets me know that this is totally my fault, and that the doctor could NOT have told me that this card would work.
Finally, I get her to give me the number to patient assistance, and I thank her for her unhelpfulness.

Second step-Call the number that witch 1 gave me. Get understanding person who unfortunately confirms rude witch’s stuff, but hears me out and issues us a “second use” card for the price of the perscription. She informed us that the card wouldn’t get here until Friday. I also explain to her that the cost is prohibitive to us, even though we have insurance. She puts me through to patient assistance, where….

I get the most sarcastic, obnoxious rep ever. I explain the situation, explain the whole thing and he starts to get sarcastic with me. He tells me I have to fill out an application, and me, knowing that we’re almost down to our last pill for the shrimp, says “I don’t want to be filling out 80 yards of paperwork just to be denied.”

Jerk says: “well, if you mean one page equals 80 yards, than yeah, you’ll be filling out 80 yards of paperwork.” and then he laughed.

I broke into tears and told him he wasn’t funny.

THEN he had the nerve to tell me that this process could take at least 2 months, because since we had insurance, we’d be automatically denied, and we’d have to appeal.

Really? Automatic denial? What the…

So, since we can’t wait 30 days, I ask if he is the final word, because he’s refusing to do anything. He tells me that even his supervisor won’t do anything for me.

This is where I finally lost it. I told him the following:
“Too bad. Stuff gets overridden every day. You don’t say another word to me and I want your supervisor now.”

I get the supervisor and she almost gets her head taken off with the following statement:

“well, if you had called yesterday, you wouldn’t be in this situation! This is almost 7 pm on a holiday weekend…”

Everyone knows how well that line goes over with me.

Let’s review here…this medication is a SCHEDULE 2 CONTROLLED SUBSTANCE. This means you MAY NOT get it any sort of early. So, like the bed fiasco, how were we supposed to know that this was going to happen?

I very politely took her head off reminding her of this fact. I told her that because of the nature of the drug and their lack of any sort of urgency in this situation, that my child is being made to suffer. She then put me on hold.

She came back and they’re supposedly fed exing the card to me by tomorrow (tuesday). Should be interesting.

Meanwhile, we had our “booster pills” here, and we’ve been giving them to him, and we’ve kind of noticed something…

Shrimper’s disposition has changed drastically. We’d been dealing with the “whine monster” and wondering if it was just stress from changing schools, ect, or if it was the meds. With a 5 year old, it’s hard to tell.

So, Shire may have f’d up in our favor…letting us know that we had a side effect that we just chalked up to something else.

I’ll be on the phone with the neurologist’s office on Tuesday.

Then, the last piece is that of meet the teachers/aides/therapists. I’ve been trying to get answers out of the school all summer as to meeting Isaac’s aide and having him meet the teachers, ect. AND the biggest question-who is doing resource room for him. This is just what happens with a special needs kid. I’m still at the top of the hill on this wild ride with this one, so hopefully, these are only mini hills that will end on Tuesday morning.

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Entry filed under: annoyances, customer service, Kindergarten!, parenting hell, school, shrimper.

Umm, is it really September? Did you read the letter that got sent home?

1 Comment Add your own

  • 1. Marie  |  September 8, 2009 at 3:40 pm

    wow. y’all have a lot going on. Good luck with the meds!

    Reply

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